Tea for Me

Our monthly Motor Neurone Disease meet up ‘Tea for Me’ took place yesterday.

The group gives patients coping with the illness and their carers a chance to meet others who are in the same boat as them. It is an informal and sociable atmosphere where individuals can share experiences with others if they wish, discuss their symptoms with the nurses and enjoy a cup of tea and a slice of cake.

There is also a talk each month about a topic which may be of interest to the group. This month, Hospice staff Clare Lawrence and Helen Pybus encouraged the group to think about “what matters?” to them; a chance to explore what gives their lives value and reflect on their individual needs, as they learn to live with MND.

Cherry, one of the nurses who founded the group explains that: “The group started when we realised as a team that there were three new MND cases which had been referred to the hospices in one fortnight. They were all of the same age bracket and living locally, and we thought we should give them the opportunity to meet up. MND is a big diagnosis and normally you won’t know anyone else with the condition, so this group allows people living with the condition and their carers a chance to feel less isolated”.

Emma ran the Surrey Half for the hospices earlier in the year, and comes to the group with her mum, Dawn, who is living with the illness. Emma explains why they come along saying:

“It’s nice to have support and to know that we are not alone, especially as my mum’s condition worsens. My little boy loves it, he’s only young and he knows it as the chance for a slice of cake and a chance to play with toys, whilst mum and I are able to compare notes with others in a similar situation and chat to the nurses to get tips and hints on symptom control.”

To find out more about the care we provide, click here.